The James Whale Fund Survey
From KidneyCancerResource
Contents |
Overview
the James Whale Fund for Kidney Cancer is organising, with the assistance of Pfizer & Bayer, a survey of Patients, Carers, Relations, Friends and Medical Professionals with direct experience of Kidney Cancer.
Help us to improve the future of patient care for kidney cancer and its management in the United Kingdom.
Do you have a story to tell?
If you are a kidney cancer patient – at whatever stage from recently diagnosed to fully recovered – or have been a partner or carer to a patient (who may well not have survived the disease) you may like to take part in our survey. By doing so you will save other people for the suffering kidney cancer can cause.
The survey
This is an independent piece of research conducted by the James Whale Fund for Kidney Cancer. After you have registered (see below) you can complete the survey online.
Or we’ll send you a questionnaire in the post. Then return the completed questionnaire to the James Whale Fund, in a reply-paid envelope.
Your views will remain anonymous at all times but those completing the survey can request a copy of the findings.
Our purpose
This research will be the first nationwide survey of kidney cancer patients and carers and is part our objective to raise awareness of the disease.
To take part
Fill out the registration form online
Send you name and full postal address, indicating your gender, year of birth and whether you are a patient or carer to
By post
James Whale Fund for Kidney Cancer
46-48 King Street
Cambridge
CB1 1LN
Fax 01223 507095
or Phone 01799 585 033
The results
Will provide much needed information about how kidney cancer patients discover they have disease – and the action they take as a result.
Early diagnosis of kidney cancer can greatly improve the chance of a successful outcome. By conducting this research amongst kidney cancer patients and their carers, we will better understand the process of diagnosis and expect the findings of the survey to reveal ways in which diagnosis rates can be improved.
Carol Voderman supports kidney cancer charities UK survey
The James Whale Fund for Kidney Cancer is about to undertake the first ever patient survey into kidney cancer in the UK and we need your help to reach people who have been touched by kidney cancer.
Television presenter and broadcaster, Carol Vorderman has come out in support of this survey adding her voice so as to help patients and carers and we ask that you support the Fund in putting a 'call to action' out to as wider cross section of the British public as possible. We need to enlist people who are newly diagnosed, currently receiving treatment, those who care for sufferers, and those who have family members or friends who are sufferers. In short: anyone whose lives have been effected in any way by kidney cancer.
Carol Vorderman says: "My mother had a malignant tumour removed from her kidney last year. It was still at Stage One but we were the lucky ones. She had to have a scan for a hernia and the consultant spotted the tumour even though it was relatively small and not the specific area of medical concern at the time. For his insight, and the consequent care she received my brother, my sister and I remain eternally grateful. Sadly, many others have not been as lucky as my Mum.
"That's why I'm supporting The James Whale Fund for Kidney Cancer and the launch of their comprehensive survey for kidney cancer - the first ever undertaken in the UK
"The statistics are astounding. Over 6,000 new cases of kidney cancer are found in the UK every year. This number is on the increase. Tragically more people are killed by kidney cancer every month than on the roads of Britain. Astonishingly we all know the amounts of money and research put into safety on our roads and yet safety for your kidneys is relegated to minor role comparatively.
"As a consequence people need to know what to watch out for. They need to know the symptoms, pre and post diagnosis, so that they may be as fortunate as my Mum and catch it in the early stages. They also need to made aware of how to look after themselves to reduce the chances of contracting the disease in the first place.
"The survey is intended to add significantly to our knowledge base. There may be social, nutritional or genetic links which have not yet been discovered yet, simply because of a lack of epidemiological data. I hope this survey can add greatly to that understanding but it can only work if those who have suffered from the disease take part. I'm pleading therefore to those who have the disease, people who care for people with the disease or people who have family members or friends who have the disease to go to the web site www.jameswhalefund.org and share with us 20 minutes of your time. It may seem like a small thing to do but it really could help save many lives, even those of your own family.
Please, join the James Whale Fund for Kidney Cancer patient survey without delay."
James Whale, Chairman of the Fund and someone who had a kidney removed through cancer added; "Whilst most patients still undergo surgery to remove the kidney approximately 30% of patients presently with the disease cannot be cured by surgery and alternative treatment approaches need to be found.
The only way we can find these alternative treatments is to fund research, and that is one of the James Whale Fund for Kidney Cancer aims; funding research, the other is raising awareness for early detection and completing, this, the UK's first national patient survey.
The results of this survey will provide much needed information about how kidney cancer patients discover they have disease – and the action they take as a result.
Early diagnosis of kidney cancer can greatly improve the chance of a successful outcome. By conducting this research amongst kidney cancer patients and their carers, we will better understand the process of diagnosis and expect the findings of the survey to reveal ways in which diagnosis rates can be improved."
Thank you for your support of this very important survey which will affect thousands of people across the UK.
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